Understanding what people living with chronic illnesses suffer from is often complex. A recent survey enumerates the daily activities of those suffering Inflammatory bowel disease (IBD) They are disturbed.
Within the EII, there is the Crohn's disease, ulcerative colitis and undetermined colitis. All of these are chronic inflammatory diseases of the digestive tract, although their expression differs from person to person. In Argentina it is estimated that more than 20,000 people live with IBD.
The survey conducted by the Life Fund of Crohn & ulcerative colitis and the European Federation of Associations of Crohn and ulcerative colitis yielded several Data that can help put in perspective what it means to have an IBD. Among them, it emerges that:
80% of patients can not participate in events during outbreaks;
50% can not maintain intimate relationships;
– About 40% should interfere with their daily activities because of the symptoms.
"Making an active social life is usually a great difficulty for most patients," said Luca Escati Penelosa, president of the Foundation. Part The symptoms are a source of shame; Others such as diarrhea, abdominal pain, fever and vomiting prevent normal life. "
Panalusa, a mother of a child with Crohn's disease, explains that even in the mildest cases, there is always the fear that at any moment there will be a symptom that may leave them "left to the fate of the place and society in which they are."
Explains that reality is very negative for people with heart disease, such as IBD, that are physically invisible, but with a lack of organic health that Limits both daily activity and social work. In general, people with IBD only provoke suspicions that something is wrong with their health because they begin to isolate themselves socially by suddenly interrupting a conversation, a meal, or getting off the bus in search of a bath.
For several reasons, people with IBD They take a lot of time to talk to others about the disease: It's hard to find the words to explain what it is, because of shame, fear or even the anguish that reminds them that they have a chronic illness.
On time Inflammation of bowel syndrome (IBD) is not a cure, Can be treated by various types of drugs (corticosteroids, local anti-inflammatory drugs, immunosuppressants, and biotechnologies) to reduce the severity of the disease and attract it, and avoid delay or symptoms. In this sense, experts recommend trying to adjust the routine so that patients can continue with social life because it will make them feel better.