His nine-month-old son, Sebastien, a grandfather, or a roundabout for those who knew him, received a magnetic order of a room wherever he dared. He was chubby, sturdy and absolutely loved.
He died when he was 311 days old.
His death and the circumstances leading up to him came as a complete shock to us, and to the entire medical community he knew in his short life.
He had a rare and very dangerous epilepsy that, with such a small study, offered no warning that death was a possible outcome. Since then we have learned that only two other babies in the world have been in the form and mutation of epilepsy diagnosed in the last five years. They too died early.
My grandfather did not lead a life of illness – his life was full and he was thriving. When he was diagnosed for about six months, he was controlled by medication. He suffered only four significant seizures in his short life. Our worst fears came true when his fourth attack, the last, proved fatal.
We suffered the ultimate heartbreak. They say every parent should not suffer the loss of the child and now live with this pain, we can not agree more.
My grandfather's mind was in front of the rest of his body. While this sounds like the worst news for any parent to hear, it set the rare occurrence of star alignment for organ donation.
When we were told, we absorbed the shock as best we could, and immediately asked if my grandfather could share his organs. In the next 24 hours there was a burst of highly skilled professionals who were investigating what could be removed from my bearings and finding suitable matches. We hoped that more could be taken from him, but his condition and age added some limitations.
As we struggled with the tremendous pain of being told that our baby was dead, we took comfort in knowing that the pain we felt that day was in keeping with the happiness of another family. Rivers of sad tears, matched with tears of joy from the recipient's family. The gift of fiber gave hope of where we had lost.
We often think about the phone call, about a person who lives his life on dialysis. Seb changed the life of a man. It brings us so much pride.
The night my grandfather died, he was given a beautiful launch. His friends and family surrounded him and said good-bye. He had received hundreds of kisses and so much love whispered in his tiny ears.
The Seb was connected to more tubes than any baby should ever suffer in life, but we managed to sleep on his side and hold his hand at night, special memories we hold forever.
On the day he donated his organs, we led him to the operation. The line of doctors and nurses was picked and solemn when we said the last, childish farewell to our beautiful boy.
We went to the park near the hospital and sat in the afternoon sun. We saw a helicopter arrive on the roof during those hours, and as we think we saw the life of our baby flying into the sunset, we hope for another family.
For a few hours that night we brought back our child. Unnamed: Untitled, but never more angelic. Beautiful beauty, with an impressive scar running from chest to waist – indicating where life left it to be given to the other.
Related: Why You Should Consider Organ Donation
We are grateful to all our rooksters, an extraordinary hospital staff who helped this gift of life. My grandfather had a wonderful team around him on his last day, there was no stone left to fight his death. But as soon as it was close, a brand-new machine went into gear to ease the ultimate gift of organ donation.
This gift reduced our emptiness to a certain extent. We know that somewhere, someone else is healthy again, offered a second chance to live because of Seb.
We walked away from the hospital empty-handed, hand in hand, his heart heavy
An unbearable pain, but also with such great pride. Our little man died a hero and we feel so lucky that he was able to offer the gift of life and that we can share his story.
Organ donation and tissue is the ultimate gift. We know that hundreds of people at my grandfather's funeral have made their donation decisions in the Donutleife. "And we would call you to do the same thing.
On the Day of Life Donate Thank you Sunday this Sunday, honor our Sebby, and raise a toast to a young person who helped a part of my grandfather live. We will always be connected to an unknown family which is different as ours, by one special child.